B.C. ending rare drug coverage means girl will ‘suffer horrifically,’ family says
Charleigh Pollock, 9, is being treated for a terminal neurological disorder known as Batten disease with twice-monthly infusions of a drug that costs about $1 million per year.
Budget 2025: Cancer Care, Rare Diseases, Heart Attack Prevention Drugs On 'Lifesaving' List Now
The list of 36 drugs, which are exempt from basic customs duty, includes many expensive and imported medicines that can ...
FiercePharma2d
Seeking fruitful Lenmeldy launch, Orchard names commercial chief to oversee world’s most expensive drug
Orchard Therapeutics has tasked Robin Kenselaar with accelerating growth of Lenmeldy, the world’s most expensive drug, ...
CHEK News2d
Minister of Health directs review of drug funding for Charleigh, a terminally ill 9-year-old
Charleigh's mom says she is hopeful but "very cautious" after hearing B.C.'s Ministry of Health will review the funding of a ...
Mid Day12d
Budget 2025: Why no GST relief for rare disease drugs, ask parents
The drugs are so expensive, costing crores ... and support systems to help families navigate the challenges of rare diseases like SMA. As rare diseases impact a minuscule population, we are ...
The Financial Express8d
EXPLAINER: Why critical drugs are expensive despite import duty waiver
Many of such imported medicines are quite expensive for the average Indian ... In the case of 36 drugs used for cancer, rare diseases and other critical conditions, the import duties are now ...
CBC.ca29d
4 drugs for rare diseases to be covered under N.B. deal with federal government
"These four that are identified today are expensive drugs that we will be ... Sask. agrees to $40M rare drug plan with Ottawa to improve access, screening B.C., Ottawa ink $426M health-care ...
Victoria News2d
B.C. decision to cut terminal Langford girl's drug funding under 'urgent review'
The province's decision to withdraw funding for a terminally ill Langford girl’s life-sustaining treatment is under 'urgent ...
pharmaphorum1d
Soliris, the world’s most expensive drug: will NICE judge it affordable?
NICE is on a collision course with a pharma company once again – this time over Soliris, the most expensive drug in the world. Approved in 2011 as the first and only treatment for the very rare ...
Victoria News3d
Langford mom blindsided by B.C.'s decision to cut terminal daughter's treatment
A Langford mom says she feels “blindsided” by the province’s decision to end funding for her terminally ill daughter’s life-sustaining treatment. For over five years, nine-year-old Charleigh – who ...
Sydney Morning Herald8d
A small team of Australian scientists won a rare drug approval – and upended the pharma system
Add articles to your saved list and come back to them any time. Hundreds of thousands of doses of a new drug to treat a major disease are being handed out to patients this week after a small ...
Yahoo News Canada29d
4 drugs for rare diseases to be covered under N.B. deal with federal government
"These four that are identified today are expensive drugs that we will be able to use very soon, but there's lots of others there that will demand similar attention," he said. The letter from the ...