Batten Disease expert baffled by BC's decision to cut funding to nine year old Charleigh Pollock for her life-sustaining medication, Brineura ...

B.C. Health Minister Josie Osborne has directed staff to investigate the case of a terminally ill Langford child who is weeks ...

While most parents of kindergartners are worried about their kids learning to read and playing well with others, Bryan and Beth Fugere of Shakopee are worried about enrolling not just one, but two ...

Charleigh's mom says she is hopeful but "very cautious" after hearing B.C.'s Ministry of Health will review the funding of a ...

The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens. Anna Lowri Roberts, from Sarn Mellteyrn, in Gwynedd, was diagnosed with ...

Get Instant Summarized Text (Gist) Batten disease, a fatal neurodegenerative condition in children, also affects the enteric nervous system, leading to severe gastrointestinal issues. Gene therapy ...

The province's decision to withdraw funding for a terminally ill Langford girl’s life-sustaining treatment is under 'urgent ...

The exact number of kids with Batten disease remains unknown; however, some researchers have estimated it affects around three out of every 100,000 children in the U.S. Two of Tracy VanHoutan's ...

Anna Roberts, 11, is one of just 39 people in the UK with the CLN3 strain of Batten Disease. Helen Gardner was bleeding and submerged in the water until two 14-year-old boys heard her cries. Cases ...

Researchers at WashU Medicine have described the neurodegeneration that occurs in the nervous system of the bowel in Batten disease, a rare and fatal genetic condition. In their latest study ...