Charleigh Pollock, 9, is being treated for a terminal neurological disorder known as Batten disease with twice-monthly ...

The only drug that treats children with a rare degenerative disease called Batten disease could be withdrawn within the next ...

Nine-year-old Charleigh Pollock, who attends Happy Valley School, will soon lose funding for the enzyme replacement infusions ...

Patient-driven research Batten disease refers to a group of inherited nervous system disorders in which a child lacks a crucial enzyme that breaks down and recycles cellular waste. Also known as ...

While most parents of kindergartners are worried about their kids learning to read and playing well with others, Bryan and Beth Fugere of Shakopee are worried about enrolling not just one, but two ...

The province's decision to withdraw funding for a terminally ill Langford girl’s life-sustaining treatment is under 'urgent ...

A Langford mom says she feels “blindsided” by the province’s decision to end funding for her terminally ill daughter’s life-sustaining treatment. For over five years, nine-year-old Charleigh – who ...

Charleigh's mom says she is hopeful but "very cautious" after hearing B.C.'s Ministry of Health will review the funding of a drug for the terminally ill nine-year-old.

The mother of a terminally ill 11-year-old has spoken of her heartbreak at knowing her daughter may not live past her teens. Anna Lowri Roberts, from Sarn Mellteyrn, in Gwynedd, was diagnosed with ...

The exact number of kids with Batten disease remains unknown; however, some researchers have estimated it affects around three out of every 100,000 children in the U.S. Two of Tracy VanHoutan's ...

Anna Roberts, 11, is one of just 39 people in the UK with the CLN3 strain of Batten Disease. Helen Gardner was bleeding and submerged in the water until two 14-year-old boys heard her cries. Cases ...

Get Instant Summarized Text (Gist) Batten disease, a fatal neurodegenerative condition in children, also affects the enteric nervous system, leading to severe gastrointestinal issues. Gene therapy ...